An autosomal recessive disease, usually of childhood onset, characterized pathologically by degeneration of the spinocerebellar tracts, posterior columns, and to a lesser extent the corticospinal tracts.

Other languages: French, Spanish.

  • CajunHeart Kim Bourg describes her life with the condition, and suggests strategies for coping with it in oneself or others. Includes details of symptoms and diagnosis.
  • Friedreich Ataxia Research Association Summarises recent progress in ataxia research and the search for better treatment.
  • Friedreich's Ataxia Fact Sheet A resources guide and fact sheet compiled by NINDS, the National Institute of Neurological Disorders and Stroke.
  • Friedreich's Ataxia Parents Group With advice for new parents on the disease, and on how the parent might better cope emotionally.
  • Friedreichs Ataxia Society Ireland Voluntary organisation providing support to anyone affected by genetic ataxias. Includes events calendar, membership details, and information on accessibility issues.
  • GeneClinics: Friedreich Ataxia An in depth look at this disorder. Includes a summary, diagnosing, molecular genetic testing, clinical description and management.
  • Matt's Mansion Describes his life with the condition, and his travels in a wheelchair. Includes information for any disabled person considering foreign travel.
  • NORD: Friedreich's Ataxia Offers the synonyms, a general discussion and further resources.
  • Not Going Quietly A personal account of diagnosis, daily life, challenges, and international travel. Includes details of treatments, and a photograph gallery.
  • Swiss Association of Friedreich Ataxia Parents and friends of patients campaigning for better treatment for ataxics in Switzerland; also sharing news and information about the condition and current research.

Media publications

  • Patient loses right-to-food fight The BBC reports that a man with Friedreich's ataxia has lost the last stage of his legal fight to insist on his being fed artificially in the final stages of his life. (Published 2006-08-08 00:00:00)

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