• British Columbia Neurofibromatosis Foundation BCNF is a membership driven organization, which empowers individuals with NF and their families to reach their full potential by providing support, education and research funding.
  • Neurofibromatosis Information page compiled by NINDS, the National Institute of Neurological Disorders and Stroke.
  • Neurofibromatosis Association of Australia Inc. Support group for people with neurofibromatosis. Has a medical and scientific advisory board and close affiliation with similar NF groups overseas.
  • Neurofibromatosis Clinic at M. D. Anderson Cancer Center Information about neurofibromatosis and details of Center which provides diagnosis, treatment, patient education, and relevant research.
  • Neurofibromatosis Clinics Association, Inc. A non-profit organization for people with NF and their families.
  • Neurofibromatosis, Inc. Support and information for those with Neurofibromatosis.
  • Neurofibromatosis Cafe NF patient, Reggie Bibbs, presents the personal aspects of living with neurofibromatosis including news, events, blog, live chat, photographs and videos.
  • NF2Crew On-line discussion group for people with neurofibromatosis 2.
  • NHS Choices: Neurofibromatosis Provides information on this genetic disorder that affects the nervous system and the skin. Includes details of symptoms, causes, diagnosis, treatment and complications.
  • Patient UK: Neurofibromatosis Factsheet on this condition, including its epidemiology, presentation, features, problems, investigations, differential management, prognosis and prevention.
  • Race for NF Research Dedicated to promoting awareness of Neurofibromatosis. It also contains the latest research as well as fund raising programs (Marathons, racing, walking, etc) that raise money towards NF research.
  • Texas Neurofibromatosis Foundation Includes a list of events, fundraisers and outreach programs, as well as background information on the disease, and links to related resources.
  • The Children's Tumor Foundation Dedicated to improving the health and well being of individuals and families affected by the neurofibromatosis (NF).
  • Understanding Neurofibromatosis This information will explain what NF is, what causes NF, what your family will need to do about it, and who can help you. From the University of Chicago Comer Children's Hospital.

Inter CAFFE

31 korisnika prisutno: 0 registrovanih i 31 senkica. Ulogovani: Nema
Filigranska kapija od stihova - Dejan Milenković
16.08.2019 22:52, tragalac@Umetnost
Muzika, tekst - moja omiljena pesma
14.06.2019 08:02, Sammir@Umetnost
Potrosacko drustvo iz vizure jednog potrosaca
14.06.2019 08:00, Sammir@Posao
Vicevi - Mujo, Haso, Lala, Sosa, plavuse i ostali
14.06.2019 07:53, Sammir@Opušteno
Dobro došli - predstavite se
14.06.2019 07:51, Sammir@Opušteno
Poezija - najlepsi stihovi
16.04.2019 08:23, tragalac@Umetnost
Preporuke za citanje - preporucite knjigu, zanimljivo stivo
18.03.2019 10:58, solium@Umetnost
Miroslav Mika Antic - neki pesnik iz Mokrina
12.03.2019 23:11, Maxa@Umetnost

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