Fanconi Anemia is an inherited anemia which leads to bone marrow failure (aplastic anemia). It is also know as Diamond Blackfan Anemia/Syndrome.

Other languages: French.

  • Alex and Matt Pearl Personal stories of two children fighting Fanconi Anemia.
  • Blackfan Yahoo list group for Diamond Black Fan Anemia sufferers.
  • Family Village: Fanconi Anemia Features contact information for the Fanconi Anemia Research Fund. Links to personal accounts and areas where one can learn about the disease.
  • Fanconi Yahoo list group for sufferers of this condition.
  • Fanconi Anemia Fact Sheet - Jewish Genetic Diseases Fact Sheet on this anemia with emphasis on FANC-C variant of disease being a Jewish Genetic Diseases, including support resources.
  • Fanconi Anemia Research Fund To find effective treatments and a cure for this disease, and to provide education and support services to affected families worldwide.
  • Fanconi Anemia Web An informational site for this disorder.
  • Fanconi Canada Canadian charity whose mission is to fund medical research into finding a cure for Fanconi Anemia and to serve as a support network for affected Canadian families.
  • Fanconi Syndrome Read how Markita Worthy celebrated her 31st birthday, having Fanconi's syndrome for 29 of those years. Also offers information about this rare disorder and links to further resources.
  • Kaps for Kendall In memory of Kendall Atkinson who died of Fanconi Anemia. Make or sponsor a hat that will be donated to children and adults in cancer and hematology treatment centers.
  • KATA Foundation The Kendall and Taylor Atkinson Foundation (KATA) raises funds to support scientific and medical research of effective treatments and a cure for Fanconi anemia

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