Spinal muscular atrophy is a term for a group of inherited neuromuscular diseases. All forms of the disease affect specialized nerve cells called motor neurons, which control the movement of voluntary muscles. SMA causes lower motor neurons in the base of the brain and the spinal cord to disintegrate, preventing them from delivering electrical and chemical signals that muscles depend on for normal function.

Other languages: French, German.

  • Elizabeth's Page Elizabeth has Spinal Muscular Atrophy Type 1. She is in a clinical study at Stanford for SMA type. She has beat the odds. Read about her journey through life.
  • Families of SMA (Spinal Muscular Atrophy) International support group and resource center for this disease, includes current research.
  • FightSMA Organization raising public awareness and funds for research. Features disease fact sheets, a message board, merchandise, and research updates.
  • Ilsa's SMA Resources A detailed description, news and links with information about Spinal Muscular Atrophy. A personal story of a baby, Ilsa.
  • Jennifer Trust for Spinal Muscular Atrophy Providing support, information and research news for UK families.
  • NHS Choices: Spinal Muscular Atrophy Provides information on this debilitating genetic condition. Includes a short video and details of symptoms, causes, diagnosis, treatment and prevention.
  • Nightmares from a Disability Perspective Suzy describes being diagnosed with spinal muscular atrophy at the age of two and the many years of inappropriate treatment that followed.
  • Our SMA Angels Large on-line source of information and inspiration regarding children with SMA. See their faces, read their stories, remember those who have passed and fight with those who are fighting.
  • Rhiannon’s Journey: Receiving a Diagnosis Through to Prenatal Testing Rhiannon describes obtaining a diagnosis of spinal muscular atrophy with respiratory distress only after the death of her child. She feels that the different departments and hospitals involved in her daughter's care did not communicate with each other.
  • SMA Angels Support Site A place for people to find support for Spinal Muscular Atrophy (SMA) / Werdnig-Hoffman.
  • SMA Support Inc. A tax-exempt, not-for-profit organization dedicated to providing information and support to family, friends, individuals and caregivers on all aspects regarding the genetic disease SMA.
  • Spinal Muscular Atrophy Foundation Information on SMA, and the latest updates in research, treatment and funding.
  • The Sean W. Venezia Foundation Dedicated to fighting spinal muscular atrophy by helping fund research for treatment and a cure, and providing support to families affected by SMA Type I.
  • Tori's Buddies Canadian Chapter of Andrew's Buddies, fighting Spinal Muscular Atrophy SMA.
  • Twins with SMA Sam and Alex Bolton - twins with spinal muscular atrophy. Find information and support for SMA sufferers as well as fund raising efforts.

Mali oglasi

Dragan 065/884-8890
Iskusni bravari rade hale, garaže, panelima leksanom, kao i kapije, ograde, natkrivanje terasa.

Green Smarthaus +381 65 477 5001
Najpovoljnije i najkvalitetnije montažne kuće u Srbiji, uvoz iz Austrije. Eksluzivni najprodavaniji modeli. Proverite sajt www.smarthaus.rs.

Nikolija +49 176 7884 4021
Minhen i okolina - tražim posao čuvanja deteta, ili dece. Imam jako dobro iskustvo, predana sam i pedantna. Za sve dodatne informacije, možete me kontaktirati. Molim, samo ozbiljne ponude.

Jasmina 060/184-9309
Potrebni preprodavci božićnih ježića od žita. Ručni rad, mali su, simpatični, cena je povoljna i postoji mogućnost pristojne zarade pred Novu godinu.

Edo +385 98 265 705
Selidbe i dostave u Evropsku uniju, i iz Evropske unije, vršim povoljno velikim kombijem.

SZR Limaks Beška +381 022 570 799
Proizvodnja i prodaja - kvarcne peći i kaloriferi. Kvarcne grejalice za brzo zagrevanje, sa i bez daske. www.limaks.co.rs

Inter CAFFE

40 korisnika prisutno: 3 registrovanih, 1 skrivenih i 36 senkica. Ulogovani: cesko, galeksic, niko650 (01:08)

Bolje te vidim kad sklopim oči - Milan Višnjić
Uto 16.12.2014 8:31, micha@Umetnost
Jedan od cudnijih snova
Pon 15.12.2014 15:58, jeka1983@Sanovnik forum
Iz moje svaštare
Pon 15.12.2014 12:48, micha@Umetnost
Sanjam stalno bivseg momka. Da li to ista znaci?
Sre 10.12.2014 7:59, danielarmd@Sanovnik forum
Muzicki kutak - pjesme za prijatelje
Sre 10.12.2014 0:11, apprivoiser@Umetnost
Poezija - najlepsi stihovi
Sub 06.12.2014 10:32, Wind@Umetnost
Filigranska kapija od stihova - Dejan Milenković
Sub 06.12.2014 1:28, tragalac@Umetnost
Recepti, jela od mesa - rostiljijada
Sub 06.12.2014 0:45, niko650@Životni stil

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